Bioethics™: Difference between revisions

No edit summary
No edit summary
Line 3: Line 3:


''edited by'' [http://www.livingbooksaboutlife.org/books/Bioethics/bio Joanna Zylinska]
''edited by'' [http://www.livingbooksaboutlife.org/books/Bioethics/bio Joanna Zylinska]
__TOC__  
__TOC__  
== [http://www.livingbooksaboutlife.org/books/Bioethics/Introduction '''Introduction: Bioethical Mutations in the Age of Capital''']  ==
== [http://www.livingbooksaboutlife.org/books/Bioethics/Introduction '''Introduction: Bioethical Mutations in the Age of Capital''']  ==
Line 9: Line 8:


== '''The Business of Bioethics'''  ==
== '''The Business of Bioethics'''  ==
Carl Elliott
[http://prospect.org/cs/articles?article=american_bioscience_meets_the_american_dream American Bioscience Meets the American Dream]
Jocelyn E. Mackie, Andrew D. Taylor, David L. Finegold, Abdallah S. Daar, Peter A. Singer
[http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030129 Lessons on Ethical Decision Making from the Bioscience Industry]
Carlos Novas
[http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030142 What Is the Bioscience Industry Doing to Address the Ethical Issues It Faces?]
Ezekiel J Emanuel, Trudo Lemmens, Carl Elliott


<br>Carl Elliott<br> [http://prospect.org/cs/articles?article=american_bioscience_meets_the_american_dream American Bioscience Meets the American Dream] <br><br> Jocelyn E. Mackie, Andrew D. Taylor, David L. Finegold, Abdallah S. Daar, Peter A. Singer<br> [http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030129 Lessons on Ethical Decision Making from the Bioscience Industry] <br><br> Carlos Novas<br> [http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030142 What Is the Bioscience Industry Doing to Address the Ethical Issues It Faces?] <br><br> Ezekiel J Emanuel, Trudo Lemmens, Carl Elliott<br> [http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030309 Should Society Allow Research Ethics Boards to Be Run As For-Profit Enterprises?] <br><br>
[http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030309 Should Society Allow Research Ethics Boards to Be Run As For-Profit Enterprises?]


== '''The Commercialization of Medical Research and Patient Care'''  ==
== '''The Commercialization of Medical Research and Patient Care'''  ==
T Lemmens, PB Miller
[http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030330 Regulating the Market in Human Research Participants]
Aaron S. Kesselheim, Michelle M. Mello, David M. Studdert
[http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.1000431 Strategies and Practices in Off-Label Marketing of Pharmaceuticals: A Retrospective Analysis of Whistleblower Complaints]


<br> T Lemmens, PB Miller<br> [http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030330 Regulating the Market in Human Research Participants] <br><br> Aaron S. Kesselheim, Michelle M. Mello, David M. Studdert<br> [http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.1000431 Strategies and Practices in Off-Label Marketing of Pharmaceuticals: A Retrospective Analysis of Whistleblower Complaints] <br><br> Adriane J. Fugh-Berman<br> [http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.1000335 The Haunting of Medical Journals: How Ghostwriting Sold “HRT”] <br><br> Ben Goldacre<br> [http://www.guardian.co.uk/commentisfree/2011/jul/01/bad-science-drug-trials-seeding-trials The True Purpose of a Drug Trial Is Not Always Obvious] <br><br> Marcia Angell<br> [http://www.nybooks.com/articles/archives/2011/jun/23/epidemic-mental-illness-why The Epidemic of Mental Illness: Why?] and [http://www.nybooks.com/articles/archives/2011/jul/14/illusions-of-psychiatry The Illusions of Psychiatry] <br><br> David Henry<br> [http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.1000359 Doctors and Drug Companies: Still Cozy after All These Years] <br><br>
Adriane J. Fugh-Berman
 
[http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.1000335 The Haunting of Medical Journals: How Ghostwriting Sold “HRT”]
 
Ben Goldacre
 
[http://www.guardian.co.uk/commentisfree/2011/jul/01/bad-science-drug-trials-seeding-trials The True Purpose of a Drug Trial Is Not Always Obvious]
 
Marcia Angell
 
[http://www.nybooks.com/articles/archives/2011/jun/23/epidemic-mental-illness-why The Epidemic of Mental Illness: Why?] and [http://www.nybooks.com/articles/archives/2011/jul/14/illusions-of-psychiatry The Illusions of Psychiatry]
 
David Henry
 
[http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.1000359 Doctors and Drug Companies: Still Cozy after All These Years]  


== '''Biomanufacturing and Biopatenting'''  ==
== '''Biomanufacturing and Biopatenting'''  ==
Antony Taubman


<br>Antony Taubman<br> [http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2628210/?tool=pmcentrez The International Patent System and Biomedical Research: Reconciling Aspiration, Policy and Practice] <br><br> Arti Rai, James Boyle<br> [http://www.plosbiology.org/article/info%3Adoi%2F10.1371%2Fjournal.pbio.0050058 Synthetic Biology: Caught between Property Rights, the Public Domain, and the Commons] <br><br> Paul Rabinow, Gaymon Bennett<br> [http://pubmedcentralcanada.ca/articlerender.cgi?accid=PMC2759434&tool=pmcentrez Synthetic Biology: Ethical Ramifications 2009] <br><br> D G Gill<br> [http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2065932/?tool=pmcentrez “Anything you can do, I can do bigger?”: The Ethics and Equity of Growth Hormone for Small Normal Children] <br><br> Joanna Zylinska<br> [http://joannazylinska.squarespace.com/storage/external-stuff/zylinska_enhancement_author_ms.pdf Playing God, Playing Adam: The Politics and Ethics of Enhancement]<br> <br>
[http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2628210/?tool=pmcentrez The International Patent System and Biomedical Research: Reconciling Aspiration, Policy and Practice]
 
Arti Rai, James Boyle
 
[http://www.plosbiology.org/article/info%3Adoi%2F10.1371%2Fjournal.pbio.0050058 Synthetic Biology: Caught between Property Rights, the Public Domain, and the Commons]
 
Paul Rabinow, Gaymon Bennett
 
[http://pubmedcentralcanada.ca/articlerender.cgi?accid=PMC2759434&tool=pmcentrez Synthetic Biology: Ethical Ramifications 2009]
 
D G Gill
 
[http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2065932/?tool=pmcentrez “Anything you can do, I can do bigger?”: The Ethics and Equity of Growth Hormone for Small Normal Children]
 
Joanna Zylinska
 
[http://joannazylinska.squarespace.com/storage/external-stuff/zylinska_enhancement_author_ms.pdf Playing God, Playing Adam: The Politics and Ethics of Enhancement]


== '''The Body as Property, Commodity and Gift'''  ==
== '''The Body as Property, Commodity and Gift'''  ==
Tarif Bakdash, Nancy Scheper-Hughes
[http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030349 Is It Ethical for Patients with Renal Disease to Purchase Kidneys from the World's Poor?]
Mark Schweda, Silke Schicktanz
[http://www.peh-med.com/content/4/1/4 The "spare parts person"? Conceptions of the Human Body and Their Implications for Public Attitudes towards Organ Donation and Organ Sale]
Antonia J Cronin, David Price
[http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2948558/?tool=pmcentrez Directed Organ Donation: Is the Donor the Owner?]
Howard Wolinsky
[http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2002559/?tool=pmcentrez The Thousand-Dollar Genome. Genetic Brinkmanship or Personalized Medicine?]
== Global Health Inc. ==
Robert Mitchell, Catherine Waldby
[http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2879701/?tool=pmcentrez National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue]
Kammerle Schneider, Laurie Garrett
[http://www.peh-med.com/content/4/1/1 The End of the Era of Generosity? Global Health amid Economic Crisis]
Jacquineau Azétsop, Stuart Rennie


<br> Tarif Bakdash, Nancy Scheper-Hughes<br> [http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.0030349 Is It Ethical for Patients with Renal Disease to Purchase Kidneys from the World's Poor?] <br><br> Mark Schweda, Silke Schicktanz<br> [http://www.peh-med.com/content/4/1/4 The "spare parts person"? Conceptions of the Human Body and Their Implications for Public Attitudes towards Organ Donation and Organ Sale] <br><br> Antonia J Cronin, David Price<br> [http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2948558/?tool=pmcentrez Directed Organ Donation: Is the Donor the Owner?] <br><br> Howard Wolinsky<br> [http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2002559/?tool=pmcentrez The Thousand-Dollar Genome. Genetic Brinkmanship or Personalized Medicine?] <br><br>
[http://www.peh-med.com/content/5/1/1 Principlism, Medical Individualism, and Health Promotion in Resource-poor Countries: Can Autonomy-based Bioethics Promote Social Justice and Population Health?]


== <span style="font-weight: bold;">Global Health Inc.</span>  ==
Stuart Rennie, Bavon Mupenda


<br> Robert Mitchell, Catherine Waldby<br> [http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2879701/?tool=pmcentrez National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue] <br><br> Kammerle Schneider, Laurie Garrett<br> [http://www.peh-med.com/content/4/1/1 The End of the Era of Generosity? Global Health amid Economic Crisis] <br><br> Jacquineau Azétsop, Stuart Rennie<br> [http://www.peh-med.com/content/5/1/1 Principlism, Medical Individualism, and Health Promotion in Resource-poor Countries: Can Autonomy-based Bioethics Promote Social Justice and Population Health?] <br><br> Stuart Rennie, Bavon Mupenda<br> [http://www.peh-med.com/content/3/1/25 Living Apart Together: Reflections on Bioethics, Global Inequality and Social Justice] <br><br>
[http://www.peh-med.com/content/3/1/25 Living Apart Together: Reflections on Bioethics, Global Inequality and Social Justice]  


== '''The Art of Life Between Speculation and Appreciation''' ==
== '''The Art of Life Between Speculation and Appreciation''' ==
Ionat Zurr, Oron Catts


<br> Ionat Zurr, Oron Catts<br>
[http://www.culturemachine.net/index.php/cm/article/view/30/37 Big Pigs, Small Wings: On Genohype and Artistic Autonomy]  
[http://www.culturemachine.net/index.php/cm/article/view/30/37 Big Pigs, Small Wings: On Genohype and Artistic Autonomy]  
<br><br>
 
Adam Zaretsky<br>
Adam Zaretsky
 
[http://emutagen.com/wrkhzoo.html The Workhorse Zoo Art and Bioethics Quiz]  
[http://emutagen.com/wrkhzoo.html The Workhorse Zoo Art and Bioethics Quiz]  
<br><br>
 
Critical Art Ensemble<br>
Critical Art Ensemble
 
[http://www.critical-art.net/books/flesh/ The Flesh Machine]  
[http://www.critical-art.net/books/flesh/ The Flesh Machine]  
<br><br>
 
Joanna Zylinska<br>
Joanna Zylinska
 
[http://www.youtube.com/watch?v=PMUoQtmeSo8 If It Reads, It Bleeds; 3' video, 2010]
[http://www.youtube.com/watch?v=PMUoQtmeSo8 If It Reads, It Bleeds; 3' video, 2010]
<br><br>
<youtube>PMUoQtmeSo8</youtube>  
<youtube>PMUoQtmeSo8</youtube>  
<br><br>
 
== '''[http://www.livingbooksaboutlife.org/books/Bioethics/Attributions Attributions]''' ==
== '''[http://www.livingbooksaboutlife.org/books/Bioethics/Attributions Attributions]''' ==
<br><br> '************************************************************************************************************************


'''To download a pdf version of this living book (in a slightly different incarnation), '''[http://joannazylinska.squarespace.com/storage/external-stuff/Zylinska-bioethics_book3.pdf '''please right-click here''']''', click on 'Save Link As' ('Download Linked File' on a Mac) and save it on your computer.''' It's quite a large file - 15MB, so downloading it onto your computer will take far less time than trying to open the pdf directly from its current location. However, if you prefer to just read it online, [http://joannazylinska.squarespace.com/storage/external-stuff/Zylinska-bioethics_book3.pdf click here].  
'''To download a pdf version of this living book (in a slightly different incarnation), '''[http://joannazylinska.squarespace.com/storage/external-stuff/Zylinska-bioethics_book3.pdf '''please right-click here''']''', click on 'Save Link As' ('Download Linked File' on a Mac) and save it on your computer.''' It's quite a large file - 15MB, so downloading it onto your computer will take far less time than trying to open the pdf directly from its current location. However, if you prefer to just read it online, [http://joannazylinska.squarespace.com/storage/external-stuff/Zylinska-bioethics_book3.pdf click here].  
<br>


[http://joannazylinska.squarespace.com/storage/external-stuff/Zylinska-bioethics_book3.pdf [[Image:Zylinska cover final thumbnail.jpg]]]
[http://joannazylinska.squarespace.com/storage/external-stuff/Zylinska-bioethics_book3.pdf [[Image:Zylinska cover final thumbnail.jpg]]]

Revision as of 10:28, 29 September 2011

BioethicsCover1.jpg
BioethicsCover1.jpg

Life, Politics, Economics

edited by Joanna Zylinska

Introduction: Bioethical Mutations in the Age of Capital

Bioethics is a serious business, in every sense of the word. A sub-domain of philosophy which deals with issues concerning life and health, it has to arbitrate not only over practical matters regarding patient care and medical experiments, but also over the very ontology of ‘life’: its manufacturing, patenting and redefinition in and by the biotech industry. Since bioethics functions as a node in the complex nexus of social, political and economic forces, it is perhaps not surprising that technocapitalism does not want to leave it just to philosophers. Instead, it mobilises a whole army of experts: morality salespeople, ethics technicians, value mathematicians, to help us decide on the price of life. Consequently, bioethics increasingly abandons its more daring ambitions and responsibilities -- such as exploring the metaphysics of life or the politics of everyday survival -- to serve instead as just a ‘technical discourse about values clarification and choice’ (Haraway, 2007: 109). Its methods of working are thus principally procedural, akin to ‘facts and hypothesis testing’ in science (Haraway, 2007: 109). Feminist thinker Donna Haraway points out that medical ethics ‘is now a literal industry, funded directly by the new developments in technoscience. Ethics experts have become an indispensable part of the apparatus of technoscience-production’ (2007: 109). To put it crudely, bioethics’ role is often to get biotech corporations off the hook -- although, of course, it has the potential to be much more than that. Indeed, in its engagement with life in both a metaphysical and material sense, bioethics is conceivably one of the most exciting areas of philosophical interrogation and artistic experimentation today. ‘From Work to Text’. (more)

The Business of Bioethics

Carl Elliott

American Bioscience Meets the American Dream

Jocelyn E. Mackie, Andrew D. Taylor, David L. Finegold, Abdallah S. Daar, Peter A. Singer

Lessons on Ethical Decision Making from the Bioscience Industry

Carlos Novas

What Is the Bioscience Industry Doing to Address the Ethical Issues It Faces?

Ezekiel J Emanuel, Trudo Lemmens, Carl Elliott

Should Society Allow Research Ethics Boards to Be Run As For-Profit Enterprises?

The Commercialization of Medical Research and Patient Care

T Lemmens, PB Miller

Regulating the Market in Human Research Participants

Aaron S. Kesselheim, Michelle M. Mello, David M. Studdert

Strategies and Practices in Off-Label Marketing of Pharmaceuticals: A Retrospective Analysis of Whistleblower Complaints

Adriane J. Fugh-Berman

The Haunting of Medical Journals: How Ghostwriting Sold “HRT”

Ben Goldacre

The True Purpose of a Drug Trial Is Not Always Obvious

Marcia Angell

The Epidemic of Mental Illness: Why? and The Illusions of Psychiatry

David Henry

Doctors and Drug Companies: Still Cozy after All These Years

Biomanufacturing and Biopatenting

Antony Taubman

The International Patent System and Biomedical Research: Reconciling Aspiration, Policy and Practice

Arti Rai, James Boyle

Synthetic Biology: Caught between Property Rights, the Public Domain, and the Commons

Paul Rabinow, Gaymon Bennett

Synthetic Biology: Ethical Ramifications 2009

D G Gill

“Anything you can do, I can do bigger?”: The Ethics and Equity of Growth Hormone for Small Normal Children

Joanna Zylinska

Playing God, Playing Adam: The Politics and Ethics of Enhancement

The Body as Property, Commodity and Gift

Tarif Bakdash, Nancy Scheper-Hughes

Is It Ethical for Patients with Renal Disease to Purchase Kidneys from the World's Poor?

Mark Schweda, Silke Schicktanz

The "spare parts person"? Conceptions of the Human Body and Their Implications for Public Attitudes towards Organ Donation and Organ Sale

Antonia J Cronin, David Price

Directed Organ Donation: Is the Donor the Owner?

Howard Wolinsky

The Thousand-Dollar Genome. Genetic Brinkmanship or Personalized Medicine?

Global Health Inc.

Robert Mitchell, Catherine Waldby

National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue

Kammerle Schneider, Laurie Garrett

The End of the Era of Generosity? Global Health amid Economic Crisis

Jacquineau Azétsop, Stuart Rennie

Principlism, Medical Individualism, and Health Promotion in Resource-poor Countries: Can Autonomy-based Bioethics Promote Social Justice and Population Health?

Stuart Rennie, Bavon Mupenda

Living Apart Together: Reflections on Bioethics, Global Inequality and Social Justice

The Art of Life Between Speculation and Appreciation

Ionat Zurr, Oron Catts

Big Pigs, Small Wings: On Genohype and Artistic Autonomy

Adam Zaretsky

The Workhorse Zoo Art and Bioethics Quiz

Critical Art Ensemble

The Flesh Machine

Joanna Zylinska

If It Reads, It Bleeds; 3' video, 2010

Attributions

To download a pdf version of this living book (in a slightly different incarnation), please right-click here, click on 'Save Link As' ('Download Linked File' on a Mac) and save it on your computer. It's quite a large file - 15MB, so downloading it onto your computer will take far less time than trying to open the pdf directly from its current location. However, if you prefer to just read it online, click here.