Bioethics™

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Life, Politics, Economics

ISBN: 978-1-60785-256-8

edited by Joanna Zylinska

Contents

Introduction: Bioethical Mutations in the Age of Capital

Bioethics is a serious business, in every sense of the word. A sub-domain of philosophy which deals with issues concerning life and health, it has to arbitrate not only over practical matters regarding patient care and medical experiments, but also over the very ontology of ‘life’: its manufacturing, patenting and redefinition in and by the biotech industry. Since bioethics functions as a node in the complex nexus of social, political and economic forces, it is perhaps not surprising that technocapitalism does not want to leave it just to philosophers. Instead, it mobilises a whole army of experts: morality salespeople, ethics technicians, value mathematicians, to help us decide on the price of life. Consequently, bioethics increasingly abandons its more daring ambitions and responsibilities -- such as exploring the metaphysics of life or the politics of everyday survival -- to serve instead as just a ‘technical discourse about values clarification and choice’ (Haraway, 2007: 109). Its methods of working are thus principally procedural, akin to ‘facts and hypothesis testing’ in science (Haraway, 2007: 109). Feminist thinker Donna Haraway points out that medical ethics ‘is now a literal industry, funded directly by the new developments in technoscience. Ethics experts have become an indispensable part of the apparatus of technoscience-production’ (2007: 109). To put it crudely, bioethics’ role is often to get biotech corporations off the hook -- although, of course, it has the potential to be much more than that. Indeed, in its engagement with life in both a metaphysical and material sense, bioethics is conceivably one of the most exciting areas of philosophical interrogation and artistic experimentation today. (more)

The Business of Bioethics

Carl Elliott 
American Bioscience Meets the American Dream
Jocelyn E. Mackie, Andrew D. Taylor, David L. Finegold, Abdallah S. Daar, Peter A. Singer 
Lessons on Ethical Decision Making from the Bioscience Industry
Carlos Novas 
What Is the Bioscience Industry Doing to Address the Ethical Issues It Faces?
Ezekiel J Emanuel, Trudo Lemmens, Carl Elliott 
Should Society Allow Research Ethics Boards to Be Run As For-Profit Enterprises?

The Commercialization of Medical Research and Patient Care

T Lemmens, PB Miller 
Regulating the Market in Human Research Participants
Aaron S. Kesselheim, Michelle M. Mello, David M. Studdert 
Strategies and Practices in Off-Label Marketing of Pharmaceuticals: A Retrospective Analysis of Whistleblower Complaints
Adriane J. Fugh-Berman 
The Haunting of Medical Journals: How Ghostwriting Sold “HRT”
Ben Goldacre 
The True Purpose of a Drug Trial Is Not Always Obvious
Marcia Angell 
The Epidemic of Mental Illness: Why? and The Illusions of Psychiatry
David Henry 
Doctors and Drug Companies: Still Cozy after All These Years

Biomanufacturing and Biopatenting

Antony Taubman 
The International Patent System and Biomedical Research: Reconciling Aspiration, Policy and Practice
Arti Rai, James Boyle 
Synthetic Biology: Caught between Property Rights, the Public Domain, and the Commons
Paul Rabinow, Gaymon Bennett 
Synthetic Biology: Ethical Ramifications 2009
D G Gill 
“Anything you can do, I can do bigger?”: The Ethics and Equity of Growth Hormone for Small Normal Children
Joanna Zylinska 
Playing God, Playing Adam: The Politics and Ethics of Enhancement

The Body as Property, Commodity and Gift

Tarif Bakdash, Nancy Scheper-Hughes
Is It Ethical for Patients with Renal Disease to Purchase Kidneys from the World's Poor?
Mark Schweda, Silke Schicktanz 
The "spare parts person"? Conceptions of the Human Body and Their Implications for Public Attitudes towards Organ Donation and Organ Sale
Antonia J Cronin, David Price 
Directed Organ Donation: Is the Donor the Owner?
Howard Wolinsky 
The Thousand-Dollar Genome. Genetic Brinkmanship or Personalized Medicine?

Global Health Inc.

Robert Mitchell, Catherine Waldby 
National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue
Kammerle Schneider, Laurie Garrett 
The End of the Era of Generosity? Global Health amid Economic Crisis
Jacquineau Azétsop, Stuart Rennie 
Principlism, Medical Individualism, and Health Promotion in Resource-poor Countries: Can Autonomy-based Bioethics Promote Social Justice and Population Health?
Stuart Rennie, Bavon Mupenda 
Living Apart Together: Reflections on Bioethics, Global Inequality and Social Justice

The Art of Life Between Speculation and Appreciation

Ionat Zurr, Oron Catts 
Big Pigs, Small Wings: On Genohype and Artistic Autonomy
Adam Zaretsky 
The Workhorse Zoo Art and Bioethics Quiz
Critical Art Ensemble 
The Flesh Machine
Joanna Zylinska – If It Reads, It Bleeds; 3' video, 2010 

Attributions

A 'Frozen' PDF Version of this Living Book

Download a 'frozen' PDF version of this book as it appeared on 10th October 2011

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